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XERO
08-07-2016, 01:06 AM
So yeah... my niece got diagnosed with this 2 days ago, so I'm trying to get as much info out of it as I can. Has anyone ever experienced this before?

The more knowledge I can get from this, the better prepared I can be for whatever happens. Thanks in advance.

snake
08-07-2016, 01:16 AM
That's horrible man. I wouldn't be in any position to help or give advice, but you have my thoughts.

XERO
08-07-2016, 01:39 AM
And I mean to put this in the Everything Else threads. Sorry, just a lot on my mind.

plastroncafe
08-07-2016, 08:05 PM
I'm so very sorry to hear this.
Cancer sucks.

ProactiveMan
08-07-2016, 08:50 PM
Sorry to hear that. I guy I used to work with had lymphatic cancer. He's been in remission for a couple of years now after chemo and an operation to remove the nodes. It took it out of him, but he's doing pretty well these days. Best wishes to your niece.

IndigoErth
08-07-2016, 08:53 PM
Very sorry to hear. :tsad: I hope they've caught it early and are able to put a stop to it relatively easily. Not all that knowledgeable really, but I've always heard that the lymph nodes are not a good place for it to be or get to as that can be like the expressway for cancer to try to spread elsewhere.

Cryomancer
08-07-2016, 10:49 PM
If it's anything like what my girlfriend got...try and get her into actual cancer-fighting treatment ASAP. Push for stuff to be moved up if she's healthy enough to stand the treatment. Try to not let them screw you around with wasting time on this.

XERO
08-08-2016, 02:51 AM
I'm gonna go try to see her tomorrow morning, so if I get any information, I'll keep you all posted.

Thanks for the words so far. She's only f*ckin' 19 years old. Just started college last fall.

BubblyShell22
08-08-2016, 02:37 PM
So sorry to hear about this, dude. Your niece and everyone in your family is in my thoughts.

TheCanadiandrome
08-08-2016, 02:39 PM
I'm gonna go try to see her tomorrow morning, so if I get any information, I'll keep you all posted.

Thanks for the words so far. She's only f*ckin' 19 years old. Just started college last fall.

all the best dude and hope she pulls through

XERO
08-08-2016, 04:21 PM
I got to see her today. They're still testing her to make sure for the final diagnosis. I'll just do my best to prepare for the worst.

Speaking of worse, I just found out another friend of mine committed suicide last Tuesday. This week officially sucks.

IndigoErth
08-08-2016, 09:21 PM
"When it rains, it pours," I guess. :( Sorry to hear about your friend, too.


19?? That poor girl, nobody deserves that. Try to keep positive and encouraging, for her sake, at least in front of her.

CylonsKlingonsDaleksOhMy
08-08-2016, 09:22 PM
Not sure how I missed this. Sympathy and prayers, XERO.

BubblyShell22
08-09-2016, 08:29 AM
Sorry to hear about your friend, too. My advice for your niece is if it is bad news, the best you can do is spend as much time with her as possible and cherish the time you do have. I hope things work out though.

XERO
08-09-2016, 08:16 PM
So it turns out it wasn't lymphoma, but a different form of soft tissue cancer. One of the rarest in the world:

Synovial sarcoma. (http://sarcomahelp.org/synovial-sarcoma.html)

Machias Banshee
08-09-2016, 08:33 PM
I'm so sorry you're having such an awful time, hun. :( I hope your niece's condition is in an early enough stage that it can be taken care of. I lost my nephew a few years back to neuroblastoma... you know how to contact me if you need to talk/vent.

XERO
08-09-2016, 09:25 PM
Thank you guys. Sorry, I'm not one to put out personal sh*t nowadays. I did that enough with my own condition a few years back.

You guys are family enough to know what's going on, though.

Jephael
08-10-2016, 02:20 AM
So sorry to hear about this. I got a couple young cousins around that age and even though I'm not too close with them it'd break my heart if they had something like that. Best of luck to you and your niece.

Cryomancer
08-10-2016, 02:39 AM
I'm right there with you on this past week being horrible.

My girlfriend of a great many years had cancer found in her last month and it killed her last week. Then a few hours after her funeral, her dad died in the back yard. It's pretty ****ed.

Hopefully you get a happier story.

XERO
08-10-2016, 07:57 AM
Cruel sh*t, man. I find it funny how Superman can save the world, but he can't cure a disease. That's the real flaw. Kind of a metaphor of life itself, I guess. It isn't right.

BubblyShell22
08-10-2016, 10:14 AM
Yeah, very true. We have all this technology and all this great stuff, but we still have diseases that have no cure. You have my sympathies though, dude. This definitely sucks. I just recently lost my grandfather to pancreatic cancer so I know how hard it is to see a loved one in that condition.

IndigoErth
08-10-2016, 02:59 PM
Yet you don't often hear of this crap happening to bad people... :( those that might deserve a bit of karma. Why can't we just hear that terrorist leaders are dropping left and right, riddled with cancer. If a hell existed, I'd have to say clearly we're already there; part of the 'torture' being seeing bad people escape this stuff far too often while the undeserving suffer.

My cousin's wife (my cousin-in-law?) isn't much older than I am and has been battling it for some years. Started off in her breasts. Fought that a while and it tried to return a couple times, eventually had a mastectomy and that took care of that and things seemed okay. She was getting to the point they were cautioning that she may not be able to handle more chemo. Then it turned up in a lung. They tried more chemo anyway, which she toughed it out and that seemed to succeed in getting rid of it in her lung. Was okay for a number of months until either the end of last year or early in this one it showed up in her brain. Two I think. They thought it was inoperable, but they decided to chance it anyhow and manged to remove it. Now just recently one morning she woke up with a bad headache and could hardly move and found that another had turned up around her brain stem/spinal cord.

Just wtf... She's a tough woman and has been a trooper through all of this and she always puts on a brave face in front of others, but I know that has got to be so terrible for them to deal with all this and the fact that at some point it may leave them with no choice but to give up the fight. Everything they have tried and it's still determine to get her. So sad. Feel terrible for them and their three girls; her oldest from a previous marriage that only just now graduated high school, and the two they have together, one who just turned 10, and the youngest who will only be just starting school in some weeks. And of course given our healthcare system and it's costs, you can imagine what it's done to their finances as well. Terrible feeling at this point as if we're just waiting for that time when it gets to that point that it finally wins because it seems so determined to keep returning. :tsad:

BubblyShell22
08-10-2016, 04:24 PM
Yes, I agree with that sentiment, Indigo. It sucks that good people have to suffer with this stuff while bad people are able to live for a long time.

Papenbrook
08-10-2016, 08:22 PM
Yet you don't often hear of this crap happening to bad people... :( those that might deserve a bit of karma. Why can't we just hear that terrorist leaders are dropping left and right, riddled with cancer. If a hell existed, I'd have to say clearly we're already there; part of the 'torture' being seeing bad people escape this stuff far too often while the undeserving suffer.

I don't think anyone deserves that type of pain.

Immoral or not, I wouldn't wish cancer on anyone.

Jephael
08-10-2016, 09:33 PM
*** DR ***

Lets stay on topic here. Show some respect.

XERO
08-11-2016, 07:46 AM
They practically said what I wanted to say. I just don't like saying it because it makes me feel like a hypocrite. All this anger and rage in me manifests into things I want to get off my chest, but my morals (the ones I have left, anyway) ultimately stop me most of the time.

BubblyShell22
08-11-2016, 08:56 AM
I'm not saying I would wish cancer on anyone either. But what gets to me is that bad people are still able to live in this world with no problems while good people have to suffer so needlessly through no fault of their own and that we don't yet have a cure for things like this. And if we do, then our government is too selfish to let it be known and that's a crime itself.

IndigoErth
08-11-2016, 12:05 PM
On a personal enemy, not even then. A literal world enemy who has thrown away their own humanity and wants to throw away that of everyone else... eh, can't honestly say I'd feel much sympathy for them. Only for the person they could have otherwise chosen to be.




Anyhow. On the upside, many cancers are often not the death sentence anymore that people had once (or still do) fear them to be and some cancers are not as risky as some other incurable things out there. (Such as the rare-ish thing my dad ended up having.) So there's always reason to keep hope up.


Speaking of cures, I'm still fascinated by this that I read about last year:

http://www.medicalnewstoday.com/articles/300939.php
Malaria protein shows potential as cancer treatment

Pregnant women are particularly vulnerable to the malaria parasite because it produces a protein that binds readily to a sugar molecule in the placenta. This same sugar molecule is also found in most cancers. Now, researchers have shown it is possible to attach anticancer drugs to the malaria protein and use it to deliver them precisely to tumors by targeting the sugar.



Once the team discovered that the malaria parasite uses a protein it produces called VAR2CSA to embed itself in the placenta, they immediately saw the potential to use the process as a way to target cancer drugs to tumors, he adds.

The researchers - aware of the irony that one deadly disease offers the means to cure another - tested their idea in two ways: first in cell lines and then in mice, using a drug that combines the malaria protein with an anticancer toxin.

In cell lines, they found that the combination drug specifically targeted and killed more than 95% of cancer cell lines.

And in mice implanted with three types of human tumors - the drug also showed varying degrees of success. In mice with non-Hodgkin's lymphoma, the treated tumors shrank to a quarter of the size of untreated tumors.

With prostate cancer, the drug completely eliminated tumors in two of six treated mice within a month of administering the first dose, and with metastatic breast cancer, five of six treated mice were cured of the disease.

Of all things, they stumble upon malaria as being a possible tool for targeting and attacking cancer directly. Which could spare people the all-over damaging affects of going through chemo. I hope more comes from this research and that it doesn't take long.

TheCanadiandrome
08-12-2016, 05:40 PM
Thank you guys. Sorry, I'm not one to put out personal sh*t nowadays. I did that enough with my own condition a few years back.

You guys are family enough to know what's going on, though.

We're here for ya dude, always

XERO
08-13-2016, 12:52 AM
Right now, she's just here at home with us, working on getting her insurance and things like that. I thought she goes back to the hospital today, but it's next Friday instead. As usual, I'll keep you all posted.

BubblyShell22
08-13-2016, 12:51 PM
I hope things go as planned. Insurance can be tricky at times though so I really hope it's not too much of a headache.

TheCanadiandrome
08-14-2016, 02:46 PM
agreed, lots of bs and red tape

XERO
10-27-2016, 07:19 PM
Just bumping this for a update on things.

After getting a THIRD opinion, my niece is diagnosed with synovial sarcoma for sure now. She got admitted to the hospital 2 days ago for final testing before she starts her chemo (which is tomorrow).

Tomorrow is gonna be the first day, so I guess all I can do know is hope.

I would say I'll pray for her, but I'm not gonna lie and be a hypocrite: I basically haven't believed in God in the past 6 years. So I ask whoever does here to do me that favor and pray for her. I'll just do what I can to keep her positive.

BubblyShell22
10-28-2016, 05:48 PM
I say just keep your fingers crossed because that's what I do too. I hope things work out for her and for you too. If you need to vent, you know where to find us.

XERO
01-28-2018, 03:06 PM
Bumping this for the update.

The cancer finally got her. My niece passed away yesterday. Her lungs were completely taken over by polyps and it just finally shut her down. I got to see her one last time this Friday, but I just know now I was saying good bye.

She was only 21... 21 f*ckin' years old.

IndigoErth
01-28-2018, 03:27 PM
So sorry, that is just awful, esp at only 21. :( Poor kid.

Utrommaniac
01-28-2018, 03:38 PM
That's horrible :(

I'm so sorry for you and your family.

Papenbrook
01-28-2018, 04:21 PM
I'm sorry for your loss. :(

Machias Banshee
01-28-2018, 08:29 PM
I'm so sorry, hun... :(

Redeemer
01-28-2018, 08:35 PM
My condolences to you and your family. I will say a pray tonight for you guys
:cry:

XERO
01-29-2018, 01:08 AM
Thank you guys. I miss her so much. But she's not suffering anymore.

Katie
01-29-2018, 05:32 AM
Sorry to hear that. I know she fought as hard as she could. Cancer is the biggest b!tch out there.

Thoughts and prayers for your family, Ben.

Refractive Reflections
01-29-2018, 05:54 AM
My deepest condolences to you and your family. :(

Katie
01-29-2018, 05:48 PM
Tis a fearful thing
to love what death can touch.

A fearful thing
to love, to hope, to dream, to be –

to be,
And oh, to lose.

A thing for fools, this,

And a holy thing,

a holy thing
to love.

For your life has lived in me,
your laugh once lifted me,
your word was gift to me.

To remember this brings painful joy.

‘Tis a human thing, love,
a holy thing, to love
what death has touched.


Yehuda HaLevi

plastroncafe
01-29-2018, 07:01 PM
I'm so so sorry for your loss.
Eff cancer.

XERO
01-30-2018, 02:16 AM
Tis a fearful thing
to love what death can touch.

A fearful thing
to love, to hope, to dream, to be –

to be,
And oh, to lose.

A thing for fools, this,

And a holy thing,

a holy thing
to love.

For your life has lived in me,
your laugh once lifted me,
your word was gift to me.

To remember this brings painful joy.

‘Tis a human thing, love,
a holy thing, to love
what death has touched.


Yehuda HaLevi

This just made me tear up.

I mean, I get it. I get that death is a part of life that we all have to go through eventually. I get that death can happen at anytime to anyone. I get that, but the irrational part of my mind and the selfish part of me says that she didn't deserve to die. This a f*ckin' pain that I won't shake off for a long time.

Michael Jackson's death broke me. My close friend's suicide drained me. F*ckin' Chester from Linkin Park destroyed the emotion I had left. But THIS... the reason I became an uncle in the first place?

It marvels and boggles my mind how people who live up to their 60s, 70s, and 80s managed to get through sh*t like this. They've experienced agony, tragedy, and emotional breaking points for generations. I'm only 33-years-old, and I feel like I'm already shattered. I guess me being disabled at 24 kinda started this whole spiral, but that's just an excuse.

I need to get better at sh*t like this. I NEED to. I'm tired of being pissed off and I'm tired of not being spiritual anymore. But my anger took over my heart for so long, I don't know how to reset it. And my niece dying is not helping at all.

Refractive Reflections
01-30-2018, 04:57 AM
I'm certainly not familiar with your situation, but one way you try to put the pieces together is speaking with either the elderly, or survivors of suffering, hardship, and abuse (i.e. those who experienced financial hardship, war combat, abuse, life-changing illnesses, being orphaned). Seeing how they dealt with the traumas of life.

I don't know if you have any elder family members or family friends who are elderly, that you can speak to, but they can certainly provide some insight and advice into dealing with coping with hardships of life. Our grandparents (the "Greatest Generation") dealt with the Great Depression and WWII, while our parents dealt with the culturally tumultuous 60s & 70s, as the environmental backdrop of their own personal lives. Their experiences would likely dwarf our generation's experience of hardship, and can provide a hindsight perspective on the path of their lives, and the crucial crossroads locations of their lives.

...Just be a bit wary of accepting everything at face value though, because in my experience in talking with the very elderly (80 years or older), most of them have either made peace with how things went in their life and their relationships, or there's either a inner festering discontentment that they carry with them til the end, or sometimes there's something in between.

Best wishes on finding the peace you are looking for.

Katie
01-30-2018, 05:52 AM
My entire life has been guided by death. Anger is 100% natural and part of the process.

When my fiance died I found that poem and it 100% spoke to me. I was angry and scared and hurt and in shock. I mourned not only what had been but what COULD have been. He was 29. I shut down completely. I understand the not knowing how to live after something so lifechanging.

Then I saw it again when Stryker’s mother died and he and his little brother were utterly alone. The anger was real. There were alot of months... years...where uncertianty ruled them.

And then my dad died. And the anger burns again but in a different way and I think why do I have to do all this before I even really get to my full adulthood but I remember this poem and I realize that even though it feels like the universe/God/whatever you believe is against me, really the gift was having these people in the first place and the memories we have of them are our life treasure.

It is safe to close yourself up and be angry at the universe and the situation. It’s fearful to love people and know there’s a real possibility that you will feel all these things again. But the experiences and memories and love are what keeps me on the side of life instead of shutting down and lingering with death.

You and the people that knew those that died all hold memories that are pieces of that person’s life and when you come together and speak of them they are there in the fullness and richness of those memories. You know things others don’t and they know things you don’t. Their life continues with you. Pieces are lost when you close down.

As much as it sucks I wouldn’t trade my life experience for any closed off safeness. Every life touches us and everything we go through is a lesson. The person I once was is long gone, but I have evolved by carrying those experiences and lives with me.

This past April my beloved dog that my fiance got me just before he died passed away of old age and many memories went with her. She saved me in that dark time, brought Stryker and his brother around, and layed her head in my lap as my dad died. Death comes, but life persists. I have alot of life left to live and love to give and memories to keep alive.

newfan
01-30-2018, 06:00 AM
I know I am not familiar with you so I will just say that I am sorry to hear of such as sad loss, death is all the more tragic when it strikes the young, I hope you have some support.

XERO
01-30-2018, 10:10 PM
I'm doing what I can to stay strong and positive for my family and for myself. It's not gonna happen overnight, but I hope I can get back to what I used to be before this all happened.

Katie
01-31-2018, 05:46 AM
You will.

The pain does not go away. But it becomes more tolerable. The very bad memories of the last days will fade and the very good memories will remain. I was a zombie for months. Just going through motions. Changing my routine to keep my mind off things. Staying busy by pouring myself into my work.

It doesn’t seem like it now, but it will be ok eventually.