Complete Frustration

**Jo Dawn** · 11-24-2006, 07:57 PM

I don't want this to seem like I'm whining. But just let me get this off my chest...

Those of you who don't know me as well as some others... I've been sick for a while now. Don't worry, thus far it hasn't been diagnosed as anything dangerous. But therein lies another problem. It hasn't been diagnosed at all.

Going on three months straight now, I think, I've been 'sick'. I can't eat. I can't drink. I went three days with nothing but two sips of water a day. And when I did, I felt awful, like I was punched, but not physically ill. Which is why, in the picture thread, I had to laugh when gobo (I believe) told me to 'get some meat on my bones'. I had some. I lost it.

I'm JUST being able to eat some stuff, though not as much as I'd like, and I still feel awful every day. I've done the multiple doctors (and those who know me know how much I absolutely hate doctors. I wait until I really have to see them to go. I've done the blood tests, the ultrasound, the CAT scan... The only things they've figured out are some off blood counts and a cyst that have nothing to do with they way I'm feeling.

So, right now I'm supposed to be taking up to 9 pills a day. At the very least, two... I've done the different medicines; and they have a problem all their own. They make my seratonin levels wonky, so, in essence, they make me cry. Easily. Plus, they're playing havoc on my heart, so I have to wear a heart monitor for a month for them to track it all. (Bad heart problems on both sides of my family.)

I'm just frustrated. I haven't felt well in three months +... I can't do fun things I want to, but I HAVE to drag myself to work. I have bills to pay otherwise, and now tons of medical bills. Tests are expensive, and my medicines even moreso.

My frustration lies, though, in NO ONE being able to tell me what's wrong with me. I have to see a specialist now, but have to wait until mid December to see him (I made appt. weeks ago, too). I just want to know what's wrong with me, so I can fix it.

I want to feel good again. That's all. And I hate that I don't and haven't... It's so frustrating...

*Duke* · 11-24-2006, 10:52 PM

Why I personally can't relate to your situation. My mom definitely can and I can understand your fustration from her perspective. She started getting ill 18years ago and no own still knows exactly what is wrong with her. She receives a diagnosis from one doctor only to be overturned by another. One day she has something, the next day she has something else. The truth is no one completely knows the exact reason her health has been suffering for 18 years. I really hope you don't find yourself in that kind of a situation, but if you do remember maybe you remember something my mom often tells me. "While in a perfect world, someone would know exactly what was wrong with me and be able to fix me, I'd rather be here unhealthy and cherish every moment of life, then not be here for the people I love at all."

**ThirdMarioBro** · 11-24-2006, 10:59 PM

I so wish I could help Jo. I wish they could find out what is wrong. It's the feat that is usually the worst part of these things. I just wish you could get well.

*Buslady* · 11-24-2006, 11:46 PM

I hope you get your answers and feel better soon.

*Mecha Cow* · 11-25-2006, 08:03 AM

I'm no doctor, but it sounds like you're depressed. I don't want to say 'it's all in your head', but it could be something psychological. Maybe you could try seeing a counsellor (Or just talk to someone) and taking some days off work and just relax or something. I dunno.

It must suck to feel bad all the time, I hope you get better soon.

**Jo Dawn** · 11-25-2006, 12:34 PM

Thanks for your concerns... I so just needed to get that off my chest.

Duke... Thank you so much for that quote from your mom. It's very good, and helped a bit. My one cousin had something they couldn't identify, either (nothing to do with m symptoms, so they aren't the same thing) It's... oddly comforting to know that other people go through the same things, though I don't wish this on anybody. My cousin told me she felt as though people thought she was a hypochondriac, that no one believed her. And that's how I feel alot of the time. But it's real and debilitating.

Not to mention my diet now! I can't eat ANYthing. No fried, grease, acidic, buttery, hot, spicy... *takes deep breath* no lettuce (too harsh on the tummy), no fresh fruits (again, harsh because of acids), caffeine, chocolate, no fun food. I know I'm missing something though...

Thanks TMB and Buslady. I just want to know, too.

So I can fix this bad boy.

Mecha - I had a week's vacation planned from work, and took that. Unfortunately, I spent almost every day of it sick or in doctors. I thought about it being psychological... but I've taken as much time off as I can, and I've tried to relax as best I could... But it IS really physical. Thanks, though. Really, I tried to rule out that 'all in the head thing' before I ever went to the doctor. I just got too sick. Thanks for the concern and ideas, though. I appreciate them.

*hugs to all of you* I just need some support and understanding, and to know someone cares. My family and friends have been awesome about this, I thank my family HERE, too. Thank you.

Ra · 11-26-2006, 04:27 AM

Ah! Jo!

*hugs you tightly* I wish that my words could actually do something to help you other than support you. Agh! I can only hope that you have a speedy recovery. I know what it's like to be sick, but to be sick like that for three months? That's definatly not good. Remember, if you need any words of comfort, we are here for ya, okay? You've been there for us, and now we are here for you

Laurael · 11-26-2006, 11:29 PM

I don't think you're whining at all...I think you're very brave. It's awful that you don't know what's going on with your body; what it's doing. I hope you find out what's wrong and it gets fixed. *HUG*

*Kid Icarus* · 12-07-2006, 09:49 AM

I'm kinda with Duke in this situation... aside from this one month I was insanely sick (we're talking there were days I literally could NOT get out of bed because it hurt so much to move), my mom's had a few years of medical hell. Each new doctor thought they knew what it was, from it being 'in her head' to MS, to just a pinched nerve. The final result? Fibromyalga (misspelled that...). And just recently she's had some nasty blood clots in her legs, some more **** ups with her doctors. It takes it's toll pretty fast.

I hope they can figure out what's wrong with you... that's the first step. After that lets hope they can fix you

.

*Duke* · 12-07-2006, 11:52 AM

Quote:

Originally Posted by Kid Icarus

Each new doctor thought they knew what it was, from it being 'in her head' to MS, to just a pinched nerve. The final result? Fibromyalga (misspelled that...)

My mom got diagnosed with both MS and fibromyalga (sp?), but both those were later undiagnosed. Sometimes, people just don't seem to get the answers they seek, no matter how bad they want them.

JD, I really hope you feel better soon. You're in my prayers.

**Jo Dawn** · 12-13-2006, 10:17 PM

Thanks guys... I finally get to go to the specialist tomorrow... So wish me luck! I'll let y'all know how it went.

...Whether you want to know, or not!

**Jo Dawn** · 12-14-2006, 08:53 PM

So, I went to the specialist... The wait wasn't as bad as I thought... Only about an hour and a half, heh. They have a few 'ideas', but nothing concrete (most of which have really long names, and I cannot remember). He gave me a new medicine to try. More on that later.

I also found out that my blood pressure and pulse are extremely low.

But the medicine they gave me... I took it once, and I feel like I'm... ugh. I feel awful! Thus far, about 3 out of the 5 possible side effects. I'm miserable.

That, and I have to get two more tests done... But I have to wait until the end of January and February!!

*Duke* · 12-15-2006, 08:45 AM

I'm sorry your experiencing the side effects of the new medication, but hopefully it will be beneficial in the long run.

*Katie* · 02-08-2007, 11:46 AM

have they tested you for Crohn's Disease? I'm sitting at home sick today and I was watching Animal planet about some medicine they make from horse shoe crab's blood (did you know it was blue? the blood? freaky stuff)

This thread popped into my mind when I saw it.

of course it could be the headache making me loopy too

11-24-2006, 07:57 PM	#1
Jo Dawn Inactive Moderator Join Date: Jul 2003 Location: Authority On All Things Don Posts: 5,190	Complete Frustration I don't want this to seem like I'm whining. But just let me get this off my chest... Those of you who don't know me as well as some others... I've been sick for a while now. Don't worry, thus far it hasn't been diagnosed as anything dangerous. But therein lies another problem. It hasn't been diagnosed at all. Going on three months straight now, I think, I've been 'sick'. I can't eat. I can't drink. I went three days with nothing but two sips of water a day. And when I did, I felt awful, like I was punched, but not physically ill. Which is why, in the picture thread, I had to laugh when gobo (I believe) told me to 'get some meat on my bones'. I had some. I lost it. I'm JUST being able to eat some stuff, though not as much as I'd like, and I still feel awful every day. I've done the multiple doctors (and those who know me know how much I absolutely hate doctors. I wait until I really have to see them to go. I've done the blood tests, the ultrasound, the CAT scan... The only things they've figured out are some off blood counts and a cyst that have nothing to do with they way I'm feeling. So, right now I'm supposed to be taking up to 9 pills a day. At the very least, two... I've done the different medicines; and they have a problem all their own. They make my seratonin levels wonky, so, in essence, they make me cry. Easily. Plus, they're playing havoc on my heart, so I have to wear a heart monitor for a month for them to track it all. (Bad heart problems on both sides of my family.) I'm just frustrated. I haven't felt well in three months +... I can't do fun things I want to, but I HAVE to drag myself to work. I have bills to pay otherwise, and now tons of medical bills. Tests are expensive, and my medicines even moreso. My frustration lies, though, in NO ONE being able to tell me what's wrong with me. I have to see a specialist now, but have to wait until mid December to see him (I made appt. weeks ago, too). I just want to know what's wrong with me, so I can fix it. I want to feel good again. That's all. And I hate that I don't and haven't... It's so frustrating... __________________

11-24-2006, 10:59 PM	#3
ThirdMarioBro Tea Time! Join Date: Feb 2003 Posts: 8,905	I so wish I could help Jo. I wish they could find out what is wrong. It's the feat that is usually the worst part of these things. I just wish you could get well. __________________

11-24-2006, 11:46 PM	#4
Buslady WingsOfDarkness! Perkele! Join Date: Oct 2003 Location: In 7803... Posts: 4,366	I hope you get your answers and feel better soon. __________________

11-25-2006, 08:03 AM	#5
Mecha Cow Gorgeous and modest too Join Date: Oct 2003 Location: The Netherlands Posts: 3,699	I'm no doctor, but it sounds like you're depressed. I don't want to say 'it's all in your head', but it could be something psychological. Maybe you could try seeing a counsellor (Or just talk to someone) and taking some days off work and just relax or something. I dunno. It must suck to feel bad all the time, I hope you get better soon. __________________

11-25-2006, 12:34 PM	#6
Jo Dawn Inactive Moderator Join Date: Jul 2003 Location: Authority On All Things Don Posts: 5,190	Thanks for your concerns... I so just needed to get that off my chest. Duke... Thank you so much for that quote from your mom. It's very good, and helped a bit. My one cousin had something they couldn't identify, either (nothing to do with m symptoms, so they aren't the same thing) It's... oddly comforting to know that other people go through the same things, though I don't wish this on anybody. My cousin told me she felt as though people thought she was a hypochondriac, that no one believed her. And that's how I feel alot of the time. But it's real and debilitating. Not to mention my diet now! I can't eat ANYthing. No fried, grease, acidic, buttery, hot, spicy... takes deep breath no lettuce (too harsh on the tummy), no fresh fruits (again, harsh because of acids), caffeine, chocolate, no fun food. I know I'm missing something though... Thanks TMB and Buslady. I just want to know, too. So I can fix this bad boy. Mecha - I had a week's vacation planned from work, and took that. Unfortunately, I spent almost every day of it sick or in doctors. I thought about it being psychological... but I've taken as much time off as I can, and I've tried to relax as best I could... But it IS really physical. Thanks, though. Really, I tried to rule out that 'all in the head thing' before I ever went to the doctor. I just got too sick. Thanks for the concern and ideas, though. I appreciate them. hugs to all of you I just need some support and understanding, and to know someone cares. My family and friends have been awesome about this, I thank my family HERE, too. Thank you. __________________

11-24-2006, 10:52 PM	#2
Duke Mad Scientist Join Date: Dec 2002 Posts: 1,913	Why I personally can't relate to your situation. My mom definitely can and I can understand your fustration from her perspective. She started getting ill 18years ago and no own still knows exactly what is wrong with her. She receives a diagnosis from one doctor only to be overturned by another. One day she has something, the next day she has something else. The truth is no one completely knows the exact reason her health has been suffering for 18 years. I really hope you don't find yourself in that kind of a situation, but if you do remember maybe you remember something my mom often tells me. "While in a perfect world, someone would know exactly what was wrong with me and be able to fix me, I'd rather be here unhealthy and cherish every moment of life, then not be here for the people I love at all."

11-26-2006, 04:27 AM	#7
Ra It's my desire? Join Date: Sep 2004 Location: In your pants. Posts: 4,441	Ah! Jo! hugs you tightly I wish that my words could actually do something to help you other than support you. Agh! I can only hope that you have a speedy recovery. I know what it's like to be sick, but to be sick like that for three months? That's definatly not good. Remember, if you need any words of comfort, we are here for ya, okay? You've been there for us, and now we are here for you __________________ "So. The whole lot of you against little old me? How retarded."

11-26-2006, 11:29 PM	#8
Laurael Random Punk Join Date: Oct 2006 Posts: 17	I don't think you're whining at all...I think you're very brave. It's awful that you don't know what's going on with your body; what it's doing. I hope you find out what's wrong and it gets fixed. HUG

12-07-2006, 09:49 AM	#9
Kid Icarus Foot Elite Join Date: Jan 2003 Location: Angel Land Posts: 4,150	I'm kinda with Duke in this situation... aside from this one month I was insanely sick (we're talking there were days I literally could NOT get out of bed because it hurt so much to move), my mom's had a few years of medical hell. Each new doctor thought they knew what it was, from it being 'in her head' to MS, to just a pinched nerve. The final result? Fibromyalga (misspelled that...). And just recently she's had some nasty blood clots in her legs, some more **** ups with her doctors. It takes it's toll pretty fast. I hope they can figure out what's wrong with you... that's the first step. After that lets hope they can fix you .

12-13-2006, 10:17 PM	#11
Jo Dawn Inactive Moderator Join Date: Jul 2003 Location: Authority On All Things Don Posts: 5,190	Thanks guys... I finally get to go to the specialist tomorrow... So wish me luck! I'll let y'all know how it went. ...Whether you want to know, or not! __________________

12-14-2006, 08:53 PM	#12
Jo Dawn Inactive Moderator Join Date: Jul 2003 Location: Authority On All Things Don Posts: 5,190	So, I went to the specialist... The wait wasn't as bad as I thought... Only about an hour and a half, heh. They have a few 'ideas', but nothing concrete (most of which have really long names, and I cannot remember). He gave me a new medicine to try. More on that later. I also found out that my blood pressure and pulse are extremely low. But the medicine they gave me... I took it once, and I feel like I'm... ugh. I feel awful! Thus far, about 3 out of the 5 possible side effects. I'm miserable. That, and I have to get two more tests done... But I have to wait until the end of January and February!! __________________

12-15-2006, 08:45 AM	#13
Duke Mad Scientist Join Date: Dec 2002 Posts: 1,913	I'm sorry your experiencing the side effects of the new medication, but hopefully it will be beneficial in the long run.

02-08-2007, 11:46 AM	#14
Katie Just...way too serious. Join Date: May 2005 Location: purgatory Posts: 3,519	have they tested you for Crohn's Disease? I'm sitting at home sick today and I was watching Animal planet about some medicine they make from horse shoe crab's blood (did you know it was blue? the blood? freaky stuff) This thread popped into my mind when I saw it. of course it could be the headache making me loopy too __________________ THE WORLD IS JUST AWESOME